Half way there

Hello to all of you. I am so happy to report that we have left Baltimore for home. We got on the road today at about 1:30pm EDST. We are now camped out at a hotel in Zanesville, Ohio for the night. (Thanks, Carol, for getting us our rooms at your rate! We appreciate it so very much.) We are so glad to be out and on our way back to Indy. Avery has been slowly improving the past couple days. We started venturing out with her on Saturday and she rode in the car for an entire hour without crying a bit...wide eyed and holding Mamaw's finger all the while. She even did pretty well as we went into a couple store and stopped to eat. On Sunday, we ventured out again and she did pretty well in the IKEA store. Mom had never been in one so we had to stop just for prosperity. Overall, it seems that she gets a bit better each day. She did really well today for most of the drive. We stopped at Cabela's on Wheeling, WV because Jon and Mom had never been inside one (Mom orders sock for Ralph from their catalog). Jon and I had driven past it at least 4 times prior to this, so he wanted to stop and look around this time. Avery did pretty well in the store...especially if I was walking around (I had her on me in a front carrier) with her. Now, we are just hoping she will sleep tonight. She seems to fall asleep eventually, but you never know how long she will sleep....sometimes she is awake at 3 am and sometimes 5 am. So, we are not getting a lot of sleep these days. Hopefully that will start to improve and become more consistant in longer length. We saw Dr. Kossoff yesterday afternoon. Of course, Avery decided to sleep during that time. He just talked to us about how things had been going since being released from the hospital and talked to us about next steps with medicines. He is actually going to let us start weaning the Keppra beginning next week. YEAH! HE said since she is on so many anticonvulsants, he feels confortable going ahead and working to get rid of one of them. He mentioned that the Keppra has been known to cause behavioral side effects...so, maybe it could be keeping he a bit aggitated. In any case, we will see. We should be completely off of it by Christams time. We also set our follow up with him and Dr. Jallo for December 12th, so that means we are back to Baltimore for a couple days in 5 weeks. We think we will have to fly out for that trip, but we'll see how the plans all works out. Well, Caiden will soon be in Pac-Man withdrawals. He just loves that game. At least he has been convinced that Santa has to out-source electronic toys and that it costs him lots of money...and game systems are too expensive for Santa to give out. Whew..."good work" to Dad on that front! Now, we have to figure out what other things he may want that Santa CAN afford. We should be back to Indy by mid-afternoon tomorrow. Caiden will return to school on Thursday and Avery and I will be off to doctor appointments (already!). I am sure it will take Jon and I the next several days to catch of on mail, phone messages, etc. We have to get the roof re-do going quickly if we still have time before winter sets-in and we have to find a cheap used car to replace the Cavalier that we "lost" in the hail event that occured several months back now. Jon had been riding his bike to work all summer, but he is not so keen to be riding it to work in the snow that will surely come this winter. We'll see how that all turns out. Again, we can' thank you all enough for all the support and strength you have given us through these difficult last months. We could not have made it through without you. We very much are looking so forward to seeing all of you and getting to thank you personally! And, we can't wait for you to see our little angel with your own eyes. It won't be long now... God's blessing and love to all!