End of the line...

She's Out! Finally. Praise God! We got the OK to take Avey back to the Children's House early this morning and we were out by about 2:00 this afternoon. All her stitches have been removed and the incision looks so good. Really, it is hard to believe how great it looks this soon after. We are still having reflux/GI issues with the back arching crying and multiple loose stools per day. We are hoping that some of that will resolve in the next week or so, especially as she finishes the antibiotic she is on for the UTI I mentioned a little over a week ago and once she complete the wean from the methadone (pain med). If not, Avery has an appointment to see Dr. Stanley (the developmental pediatrician she sees as Riley) on Nov. 10th and I know that Dr. Stanley will order some tests if she thinks there are any potential problems needing investigation. She is really good about that stuff. I know she will be excited to see her post-hemispherectomy. Avery has at least been sleeping better at night now for the past several days. Tonight she is sleeping without the Melatonin I gave her on previous nights. If she can sleep without it, then I certainly don't want to add anything to her system at this point that isn't warrented. We'll see how she does through the whole night. We are anxious for her to get past all this "GI" discomfort and to start seeing what gains this surgery might bring her. We have all been a little nervous about vision post-op, even though we "know" it shouldn't have effected it any further than the malformation already had. I think it will just take time for her to be able to "show" us that she CAN see, as well as what else she may be able to do now that she would not have been able to do before. We also are certainly still praying that the "yuckies" do not make a return. We think things are good so far on that front, but we can't be positive just yet. Though, we have not seen anything like we saw before surgery. We are just so glad to be out of the hospital...it was so good not to have to be over there tonight and to have the 3 of us to wrestle her around when she is so upset. We will be off in search of activites to do tomorrow for Halloween. Caiden is going as Harry Potter. He is so excited. His outfit is great, so I think he will make a good Potter. I'm sure he will have plenty of stories to share with all of you when we get back. Well, I am sorry this is so short, but I am exhausted....ran all day on only 3 hours of sleep. Love and Hugs from all of us. We can't wait to see everyone again. It won't be long now!