Day 14 Still the Same

Nothing too much new to report. Avery was pretty much the same today. Although, I don't believe she bit, threw-up, or you-know-what on anybody. Daddy stayed with her most of the morning and day after my Mom's overnight. I spent a good amount of time cleaning our room at the house...two weeks and 4 people make quick work of a clean room. It had to be done. My Mom and Caiden got heir hair cut...Caiden's was getting very scraggly. I spent the evening and early night withAvery. She rested for a bit and then woke up a little fussy and with a few seizures before my Mom arrived for the overnight shift. We bathed her really well and cleaned her head all over before I left for the rest of the night. She was only a little fussy during that time and was looking pretty Sweet Pea-ish when we were done. We slathered her with the Sweat Pea lotion sent by the Lewis's from IPC (thank you...so appropriate and awesome smelling). Mom had made her some comfy all-cotton gowns (you know how bad those polyester hospital gowns are) by cutting some store-bought shirts and sewing themso that they go on in the front and velcro in the back. We put one of those on her. She should be much more comfortable. So glad that my Mom can come up with and do that kind of stuff! Dr. Jallo came around today and said that we were on for Monday. He seems comfortable with proceeding with surgery so quickly...actually thinks it will be better and easier in some ways than it would be if we waited 6 months. Of course, the risks are about the same, except that there is higer incidence of needing a shunt and risk of more scarring. Jon asked if we had a warrenty on the first surgery and Dr. Jallo got a great laugh out of that. Not sure that Dr. Kossoff found as much humor in it when Jon asked him yesterday. Maybe he thought he was serious. We thought it was funny. Avery goes in for an MRI tomorrow just to give the doctors an idea of how everything looks now...helping guide the surgery team. They are also going to try to get 2 peripheral IVs placed at that time and pull the central line which is still in her neck. That would be great because the central line has been in so long that it is becoming an infection risk. I certainly wish she were not so hard to get an IV on; the central line would already have been gone if she wasn't. Also, not sure if I posted before, but the possible Staph infection they were treating her for turned out to not be one, so they stopped the antibiotic the other day. YEAH! We learned today that we will be having a couple of visitors in the days to come that will be in Baltimore, seperately, for other reasons. We are so glad that they want to stop in and see us and are looking forward to the visits. Hope this finds everyone doing well. Much love from all of us here in Baltimore to all of you. Holly